Rare But Strong Together!

We want to build a better world for patients with rare diseases!  “Solidarity” is this year’s theme stressing the importance and need for collaboration as well as mutual support in the field of rare diseases.February 29, 2012 marks the fifth international Rare Disease Day. On this day hundreds of patient organizations from more than 50 countries worldwide are organizing awareness-raising activities converging around the slogan “Rare but strong together”.

Rare diseases are life-threatening or chronically debilitating illnesses. Due to the low prevalence of each disease, medical experts are rare, knowledge is scarce, care offering inadequate, and research is limited. Very few cures exist. While the diseases are rare, collectively they affect more than 60 million people in the U.S. and Europe alone. Despite their great overall number, rare disease patients are the orphans of health systems which are often denied diagnosis, treatment and the benefits of research. (more…)

Progress Made on Physical Activity Guidelines Initiative

As a member of the Federal Physical Activity Guidelines Coalition, we are pleased to report significant progress being made in Washington, D.C. 

In a letter to U.S. Health and Human Services Secretary Sebelius, the Coalition was able to obtain bipartisan support from Congress urging her to begin the process of reviewing and renewing the federal physical activity guidelines issued in 2008.

The Physical Activity Guidelines for Americans include recommendations of the types and amounts of physical activity that people of any age or ability level should perform to gain important health benefits.  Because of the rapidly evolving nature of our scientific understanding of the benefits of exercise, we believe the guidelines must be reviewed at least every five years, as are federal dietary guidelines.

NV Governor Sandoval Joins Healing Moves to Celebrate “Exercise is Medicine” Month

Governor Brian Sandoval and the State of Nevada have joined the Healing Moves Foundation to celebrate Exercise is Medicine™ Month.  The Governor’s Proclamation is a Call to Action encouraging primary care physicians and other health care providers to include exercise when designing treatment plans for patients.  Regular physical activity is indeed a powerful prescription, with great potential to improve the health of all Americans.

Click on image to see Proclamation

Get moving: Cancer survivors urged to exercise

Cancer survivors, better work up a sweat.

New guidelines are urging survivors to exercise more, even — hard as it may sound — those who haven’t yet finished their treatment.

There’s growing evidence that physical activity improves quality of life and eases some cancer-related fatigue. More, it can help fend off a serious decline in physical function that can last long after therapy is finished.

Consider: In one year, women who needed chemotherapy for their breast cancer can see a swapping of muscle for fat that’s equivalent to 10 years of normal aging, says Dr. Wendy Demark-Wahnefried of the University of Alabama at Birmingham.

In other words, a 45-year-old may find herself with the fatter, weaker body type of a 55-year-old. (more…)

Healing Yoga for Neck and Shoulder Pain

 
The Healing Moves Foundation advisory board member Carol Krucoff, E-RYT has done it again!  Her new book, “Healing Yoga for Neck and Shoulder Pain” will help countless readers cope with the consequences of living in this digital age.  Everyday activities like using the computer, driving, texting, and even relaxing with a good book tend to round our bodies forward, creating pain and tension in the neck and shoulders.  This wonderful book features simple yoga-based neck and shoulder exercises readers can do at work or at home to release muscle tension and relax when they begin to feel pain. (more…)

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